Hubby's bike ride for Charity

Hubby has planned this bike ride for June 5th please support him if you can.
http://uk.virginmoneygiving.com/MarkAndrews
Thanks!

Poetry of Life - ME

Poetry of Life - ME
Here are some of my other poems about ME

Picking up ....

I feel a bit better, I had a really bad night though I tried to go to sleep but my stomach was swollen just under my ribs and it felt blocked again and there was some pain though very slight it stopped me getting to sleep so I went down I wrote a bit to get some thoughts out of my head then hubby came down shattered to see if I was ok and to help me get back to bed.  I was supposed to have my hair cut tomorrow I have a friend who comes to the house but I can't even do that as she wanted to come at 10am and I am not getting up early at the moment and I need a bath in the morning so I had to cancel but my hair is a real mess and needs cutting and I know I would feel better for it but I don't want to risk passing on whatever I had to her, though I can't see it been contagious now if it's gastric flu then it says on the net it is contagious for 5-7 days and I am not well yet.  It's a lovely sunny today I will have to get dressed and do something even if it's just sitting around or in the garden relaxing. My house has suffered it only takes a day or two for me to be unable to do stuff then it's a mess and then as soon I get better I end up doing it in one hog to catch up.  Though hubby helps a lot he does vaccing and mopping you know how men are they never do it the same:)  At least he could go to shops yesterday or I would not have managed.  It's times like this I realise how much it's a blessing I have no kids.  Imagine been this ill and not been able to rest, the thought is unbearable so I will count my blessings.

How shocking can you feel?!!

My friend came with her little boy he looked white as a sheet and he ended up filling his nappy and stinking out my living room!  Anyway that was Wednesday then on Sunday night I was on and off the loo all night with the runs.  It was so wearing as not getting much sleep on top of ME is dreadful as those with ME know well.
I also have like a blockage in my gullet, get this time to time usually when I eat what I shouldn't like wheat I did have bit of a wheat binge at weekend as I indulged in a pizza which I thoroughly enjoyed at the time anyway I feel so fed up and uncomfy.  I was supposed to have workmen coming today to fit us an outside tap and a thermostat but had to cancel.  I also have my craft group on Friday which I hope I can make but if I don't feel a lot better by then I can't.  I hate this 'life' and I just hope things pick up soon or not sure what I will do.  Cope I suppose like I have done for the last 15 years what more can you do ......

ME/CFS - A Subtle Threat

Shop till you drop

How tiring is shopping?! My brother gets married in June so I needed a new dress.
I went with mum she is 72 and is like superwoman well maybe not as much as she used to be but still is fitter than I am.  I thought I would go later than I would not have much time but that was a bad idea as it was too pressured and I did not get chance to stop for a break which I should have done.
I tried around 10 dresses on which is tiring in itself but the fact that none of them fit me right, one bright pink dress in Monsoon was sooooo beautiful but was tight round my ribs I figured after the wedding meal I would be bursting at the seams so decided against it plus the price tag was a bit high.  So will have to go back next week now as I dont' want to leave it till the last minute as I usually do plus we are planning the food so that will need sorted the week before.  Not long now it is exciting they get married in the US but the wedding reception is near us we have around 100 people coming it will be a great night

Help AFME via my Site

Please support Action for ME by buying from my site I am giving 50% from sales during May to them
Thanks for your help it is much appreciated for this worthy cause and please tell your friends

How my faith helps me cope

What keeps me going with my illness is my faith as a Jehovah's Witness and knowing it's only temporary and very soon God will bring a paradise earth and all humans will be free of suffering and sickness and be able to enjoy endless life in peace.  For more info go to http://www.watchtower.org/

Revelation 21 vs 1-5
1. And I saw a new heaven and a new earth; for the former heaven and the former earth had passed away, and the sea is no more. 3 With that I heard a loud voice from the throne say: “Look! The tent of God is with mankind, and he will reside with them, and they will be his peoples. And God himself will be with them. 4 And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”

(Isaiah 33:24) And no resident will say: “I am sick.” The people that are dwelling in [the land] will be those pardoned for their error.

(Isaiah 35:5-6) . . .At that time the eyes of the blind ones will be opened, and the very ears of the deaf ones will be unstopped. At that time the lame one will climb up just as a stag does, and the tongue of the speechless one will cry out in gladness. . . .

ME Awareness

I want to raise awareness of ME as it's ME Awareness month.
Many people have no clue what it's like to have ME.
I wrote this poem in 1997 but sadly it still applies and it's now 2010
Such is 'life' with ME
More of my poems here


The Difficult Road of M.E.


M.E is an illness,
That defies all belief,
Searching for a cause
And just a little relief.
Putting on a cheery face,
Trying to show you cope,
When you're dying inside,
Desperate for hope.
You don't want to depress,
Your friends so dear,
Yet you yearn for a caress
And shed many a tear.
You think "How long?"
It seems out of sight,
You battle on frustrated,
This never-ending fight.
People say they're tired,
You cannot sympathize,
You think if they only knew,
The sadness in your eyes.
You feel nobody understands,
The burden you must bear,
If they do not question,
You feel they cannot care.
Trying to look beyond,
Your present affliction,
Yet it drags you down,
Like an addiction.
You crave sleep,
So relaxing and sound,
You go to bed exhausted
Yet cannot settle down.
You think you'll invite,
Some friends for a meal,
But just the thought,
Makes it seem an ordeal.
You live with the guilt,
Of not earning any pay,
Your spouse says it's alright,
But it doesn't go away.
You cannot imagine,
In your wildest dreams,
Regaining your health,
So out of reach it seems.
Your muscles ache,
Like you have the flu,
You could go crazy,
With nothing to do.
Accepting your illness,
Is the key to the fight,
Yet you cannot look back
And forget your plight.
You must look ahead,
To the future, maybe near,
When you can live again,
How you wish it was here.
Although you may never,
Recover your former zest,
At least then you'd appreciate,
THE VALUE OF REST.
c. J.Andrews

Keeping Busy

Although Reverse therapy was not the answer for me I do realise how much keeping busy does help you cope with the illness and stops you focussing on it, just lately due to planning for a family wedding I have been focussed on invited people and making invites and therefore it's taken my mind off my health and how I feel and that has really made the difference.  So I think Reverse therapy is more like distraction therapy finding something to fill your life with which will stop you dwelling on the ME.  I am also preparing for a stall on Saturday which is now fills up this week.   Then I will have find something new next week to fill up the time making sure I do not get bored which lends itself to depression and dwelling on things....